Liver Disease Information

In Your Area

Honor Wall Stories

Read how these people dealt with their particular liver disease in their own way. Select the type of liver disease to read each story.

Share Your Story Today

Storytelling is powerful medicine! Reading your personal experience of liver disease can help inspire others on their journey.

Tell your story here!

Home > Patients & Families > Liver Champions > Bel Kambach

Bel Kambach's Story

Some of you may already know, today I embark on my most testing journey ever taken, the process of getting placed on the USA organ transplant list-- I need a liver. I was Diagnosed with PBC an incurable and progressive invisible illness (an autoimmune disease, which is defined as the immune system attacking itself). I never drank a day in my life.

On this first step, I am scheduled Monday-Friday all next week of medical testing (vampires) to determine my current MELD score. MELD stands for “Model for End-Stage Liver Disease.” MELD scores range from 6 (less ill) to 40 (gravely ill). MELD scores predicts the three month mortality rate in patients with advanced liver disease and signifies how urgently a patient like me, needs a liver transplant. From attending two liver conferences with Europe’s TOP liver GURU’s I do know for fact past 29 all other organs start failing so in Europe it is preferred to transplant before this high to avoid rejection of new liver. These are the days I wish Hugh Laurie “Dr House” would see me instead of my own Hep!
Aside from MN Mayo’s world renown Liver Transplant Team, we also must meet with accounting and Psych Dept. You may not need to wonder why.
PBC has been my only unwilling and unpredictable journey I was forced to take in life, but I guess we all have a life to live and many of us a heavy cross to carry. I can count myself lucky, because for now I’m still alive, I guess more than anything I grieve the life I used to enjoy. All I want to say to all of you is: Never take for granted your health. Take EACH and every opportunity to live your life and love to the fullest. Smile emoticon.
PS I am in need of a new liver or a small portion of someone’s liver (LIVE donor), I am blood group O. Extremely grateful if my family and friends would please share my story, you just never know who would have a burning desire to become a super Hero and save a life?

Related Terms: Liver Transplant, Liver Disease, PBC, Minnesota

Page updated: June 29th, 2017


末末末末末末末末 Begin Code for Siteimprove Analytics 末末末末