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Liver Lowdown


HAPPENINGS


News You Can Use

ALF Names CEO

The American Liver Foundation elected Thomas F. Nealon III as chief executive officer. Mr. Nealon joined the ALF national board of directors in 2009 and was elected board chair in 2012. During his tenure, he has brought strategic leadership to ALF, streamlining its operations, improving its financial performance and raising its profile in the health nonprofit community. He will continue to serve as ALF’s chair of the national board and executive committee. Read more about Mr. Nealon here.

ALF Announces the Availability of a New Online CME Program for Clinicians

In addition to public education activities, the American Liver Foundation also promotes professional education.

A new online continuing medical education program, Chronic Hepatitis C Virus Infection: Making the Decision to Treat, is intended for clinicians engaged in screening, staging and treating chronic hepatitis C.

Developed by Duke University School of Medicine and Medscape in collaboration with the American Liver Foundation, the program features hepatitis C experts Andrew Muir, MD, a member of ALF’s national medical advisory committee, and Kathryn Jack MSN, APRN, FNP-BC, a member of ALF’s Connecticut division’s board of directors. Dr. Muir is an associate professor of medicine and director of GI/Hepatology Research at Duke University Medical Center. Ms. Jack is a nurse practitioner at Connecticut GI.

Learn more and register here.

ALF Hepatitis C Patient Advocates Featured in Video Series

Several members of ALF’s National Patient Advisory Committee (NPAC) appear in a four-part videos series -- Hidden Truths -- about living with and surviving hepatitis C. To view, please click here.

ALF to Host Webinar

If you are undergoing treatment for hepatitis C, have had a liver transplant, or have a complicated treatment plan for your liver disease, your medications are likely dispensed through a specialty pharmacy. But what is the difference between retail and specialty pharmacies and what are the benefits to using one over another?

On May 28, 2015, ALF will explain it all to you in another of our series of webinars about liver disease.

Accessing and Managing Hepatitis C Treatment: Benefits of Working with a Specialty Pharmacy, will feature presentations from Eric Sredzinski, PharmD, executive vice president of clinical affairs and quality assurance at Avella Specialty Pharmacy and Kaya MacMillan, transplant hepatology physician assistant at Banner University Medical Center - Phoenix.

Dr. Sredzinski will explain exactly how specialty pharmacies operate and Dr. MacMillan will provide practical tips she’s learned from years in clinical practice about how best to work with them. Both speakers will be available for a live question and answer session following the presentation.

The webinar is supported by a grant from Avella Specialty Pharmacy.

There is still time to register. Please visit www.liverfoundation.org/hepcpharmacy.


Around Town

ALF Makes its Mark on Washington, With a Little Help from Its Friends

Twenty-nine patient advocates representing a wide variety of liver diseases traveled to Washington, DC, on May 12 to 13, 2015, to participate in the American Liver Foundation’s Advocacy Days. The event provided an opportunity for the ALF community to meet with elected officials on Capitol Hill and advocate for research funding for liver disease, education and awareness, viral hepatitis testing and improved patient access to quality care.

A corporate roundtable reception brought together industry executives, ALF leadership and patient advocates to share their thoughts and experiences with liver disease from very different perspectives.

Thousands of Leading Liver Specialists Flock to International Scientific Conference

For the first time, the American Liver Foundation was represented at The International Liver CongressTM, (ILC) organized by the European Association for the Study of the Liver, held in Vienna from April 21 to April 26, 2015.

Chief Operating Officer Lynn Gardiner Seim was part of a panel, Addressing Neglected Liver Diseases, where she talked about how to build effective national and local public education and community awareness programs.

The ILC, which celebrated its 50th year, brought together nearly 11,000 of the world’s leading liver clinicians and scientists to share information about the latest research on liver disease. The emerging public health challenge of non-alcoholic fatty liver disease was a hot topic at the meeting.

Look for a summary of key highlights on our website in the next few weeks.

ALF Greater New York and Great Lakes Divisions Go All Out During Hepatitis Awareness Month

Greater New York

On May 14, 2015, the Greater New York Division, along with several other leading local health organizations, held a press conference on the steps of New York’s City Hall where health professionals, patient advocates and city officials issued a call to action about the need for greater testing, treatment access and prevention of viral hepatitis.

The division also teamed up with several health centers during the month of May to provide hepatitis C testing, education and linkages to care and other health services. This included testing events at New York City’s Callen-Lorde Community Health Center and Queens-based Damian Health Family Care Center.

Great Lakes

Advocacy, education, and community engagement were the focus for the ALF Great Lakes Division during Hepatitis Awareness Month (HAM). Oon April 28, 2015, the division received a proclamation signed by Illinois Governor Bruce Rauner declaring May 2015 as Hepatitis Awareness Month. Great Lakes division staff also traveled to Lansing, MI, on May 14th, to celebrate HAM at the State Capitol. There, they met with legislators to request that they continue to keep hepatitis C on their radar. They also offered free HCV testing to the community on the Capitol lawn.

Additionally, the division is set to host a liver symposium for healthcare professionals and patients-general public at the Illinois Medical District on May 28th and will hold its second annual walk in Arlington Heights on May 30th. The liver symposium provided continuing medical education credits to healthcare providers who wanted to learn more about hepatitis C, cirrhosis and anti-fibrotics. Patients and the general public were invited to learn about hepatitis C, non-alcoholic fatty liver disease (NAFLD)/nonalcoholic steatohepatitis (NASH) and liver transplants. Both events offered free hepatitis C testing for members of the community.

Reaching Patients and Families with Current News About Liver Disease

The American Liver Foundation’s Mid-Atlantic Division hosted “Autoimmune Liver Disease & You,” on May 16, 2015, at Philadelphia’s Einstein Medical Center. In addition to autoimmune hepatitis, topics covered were primary biliary cirrhosis and primary sclerosing cholangitis. Presenters included Einstein’s Victor J. Navarro, MD, chairman of the division of hepatology and medical director of liver transplantation, Simona Rossi, MD, associate chairman, division of hepatology, and Eyob L. Feyssa, MD, MPH, FACP, director of the Viral Hepatitis Program in the division of hepatology. More than 40 people attended this new program.

Continuing with its public education outreach, the division also hosted its annual hepatitis C seminar on May 21, 2015, at Hahnemann University Hospital. Speakers included Andres Riera, MD, assistant professor of medicine and Robert Velasco, CRNP, hepatology nurse practitioner.

Flavors of Memphis: Food, Fun and Philanthropy

The American Liver Foundation’s Flavors of Memphis event, held on April 26, 2015, was a resounding success. Among the highlights was the presentation of an award honoring FedEx for its long-time support of ALF. The award was presented to Winn Stephenson, retired senior vice president of technology systems for FedEx Services, and the founder of the American Liver Foundation Mid-South Division.


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Page updated: May 27th, 2015

 

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