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Home > Education Resources > Liver Lowdown > Liver Lowdown Feb 2015 > Happenings

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ALF Named Charity of Choice for Houston Run

Julia Tanner, American Liver Foundation team captain, and husband, Michael Tanner celebrate his completion of the Chevron Houston Marathon.

The Desert Southwest Division was one of the charities of choice for the Chevron Houston Marathon – Run for a Reason, which took place on January 18, 2015. Sixteen participants ran on behalf of the American Liver Foundation.

Appreciating ALF Volunteers

On Wednesday, January 14, 2015, the Great Lakes Division hosted a Volunteer Appreciation Party at Board Member Brad Young’s, Rockit Burger Bar in Chicago. The event recognizes volunteers for their time and commitment. Seventy volunteers contributed more than 150 hours to ALF programs in 2014.

Running Boston Strong

The 2015 Run for Research (RFR) training season is well underway for ALF’s New England Division. The team - 175 runners strong - has been bearing the cold weather together every Saturday morning since early December at its weekly runs.

The team has raised approximately $400,000 to date to support the American Liver Foundation. Top fundraisers Deb Tully, Clay Gipson and Renee Farnham have raised nearly $50,000 alone. The Patient-Runner Connection program has more than 60 matches – creating a community of individuals living with liver disease and those running in support of them -- forging friendships that will last a lifetime. One of the patient matches consists of Patrick House, The Biggest Loser winner from Season 10, who will be returning for his fifth year on the RFR team, and Tom Williams who has been part of the Division’s patient family for many years. This will be Tom's first year on the team (and first marathon). At just 19 years old, Tom is the second youngest team member in RFR history.

Moving Hepatitis C Legislation Forward in New Jersey

The Greater New York and the Mid Atlantic Divisions of the American Liver Foundation are proud to be part of a coalition of organizations leading the charge in New Jersey to pass legislation to provide hepatitis C testing to all baby boomers. Senate Bill 876 passed the Senate Health Committee on January 26, 2015. Many physicians, health care providers and hepatitis C patients provided written testimony to support this legislation. Despite an impending blizzard the hearings took place including a stirring and compelling in-person testimony by Dr. Andrew de la Torre, the director of Liver, Pancreas, Biliary Surgery and Cancer Care at St. Joseph’s Regional Medical Center in Paterson. New Jersey Senator Joseph F. Vitale, co-sponsor of the bill, spoke passionately about his personal connection to the cause - the passing of his father due to complications of undiagnosed hepatitis C.

For more information about the bill, click here.

ALF Convenes Meeting of Hepatitis C Patient Advocates

Fifteen patient advocates gathered in San Francisco January 29-31, 2015, for the first West Coast Group meeting of the American Liver Foundation National Patient Advisory Committee (NPAC) where they participated in media training, learned about hepatitis C communications messaging and ALF public education activities. They join the 15-member East Coast group who met in late November. NPAC members will serve as patient ambassadors, communicating about hepatitis C and advocating for more hepatitis funding for research and patient care.

The NPAC is supported by Gilead Sciences.

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Page updated: February 25th, 2015


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